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This is a topic from the More Than a Decade forum on inthe00s.
Subject: aspergers documentry
Written By: mr crowly on 02/01/07 at 12:30 pm
ive been ask to do a documentry on as and as resault (iam taking a risk saying this ) using myself as the subject because i know all about it what it dose to me how it afects my life . ect whould you guys be intrested in seeing this if i complete it this my first big filim project and iam a bit nervous in making it because this is about my life and all so its quite personal but at the same time itll be intresting to see for like infomation . ( iam not rainman iam very mild but it still afects in a way of my socail life ) the idea i had was to let people know that there are actully people with as that arnt like dustins hoffmans charecter ( unfortunetly thats the sterotype that people get) and it really tears my heart out . iam 24 got a great job mainstream and specahlneeds freands ( all kinds of ld ) but a lot of people dont see that ( ive even been told by my busguide when i was needs school to stick with my own kind >:() this will hopefully get people to think as well as enjoy themselfs .
feel free to discuss this youre own thoughts ect
heres the subjects ( just a list)
the biggining
school /nusery
moving from renfrew paisly to westlothian
youth theter
the phab club
freands
the diagnosis tras
extras
performances
fready mercury stars in their eyes for phap club introduction
marc almond my first musical performance
bon scot tribut/ brian lee tribut ( high way to hell /you shook me all night long)
its a threllar
ill add more stuff but thats what ive had in mind
if you got any other sugestions please tell me
looking forward to hearing youre thoughts
Subject: Re: aspergers documentry
Written By: Paul on 02/01/07 at 3:27 pm
( iam not rainman iam very mild but it still afects in a way of my socail life ) the idea i had was to let people know that there are actully people with as that arnt like dustins hoffmans charecter ( unfortunetly thats the sterotype that people get) and it really tears my heart out .
My closest friend's son has AS and, I can tell you right here and right now, he is nothing like Hoffman's character...far from it!
Yes, he has his problems, but he's a fine young chap to boot!
What you're doing here is a fantastic idea and I wish you all the very best with it... :)
Subject: Re: aspergers documentry
Written By: mr crowly on 02/03/07 at 7:40 am
thanks paul to be honest i was a bit worriaid incase i got flamed ( happend befor) but in saying that i wanted to take a chance with this and let you guys knwo all about me
paul thanks for doing that ( giving me my respect back)
Subject: Re: aspergers documentry
Written By: danootaandme on 02/03/07 at 8:35 am
I think this will generate a lot of interest, more than you can imagine. I think everyone knows someone with Aspergers, and their are some who don't realize they know someone with Aspergers. The key is educating people to what it is, and I think that is what you can do. I for one thank you in advance.
Subject: Re: aspergers documentry
Written By: mr crowly on 02/03/07 at 5:07 pm
no probs mate iam emotionally touchd by this
Subject: Re: aspergers documentry
Written By: Paul on 02/03/07 at 6:57 pm
thanks paul to be honest i was a bit worriaid incase i got flamed ( happend befor)
I'm sorry to hear that...
but in saying that i wanted to take a chance with this and let you guys knwo all about me
Well, I'd certainly be up for a view and I think my friend would probably be interested...
Will you be uploading it on the 'net at some stage?
As I've said, it's a brilliant way of breaking the negative stereotype...hope all goes well!
Subject: Re: aspergers documentry
Written By: mr crowly on 02/04/07 at 8:20 am
a couple of ideas i had was a sitdown interveiw with various people ( two if they need help of if it involes them) or a revelations type filim ( know how that show on ch 5) where it deals with steriotypes or a sci fi type show ( i know thats a bit far but i love sci fi) iam working on scripts right now ( that takes ages to do you know lol) i know its says as but it also about various ld as well ( down syndrom spinitifia ) stuff like that so it should be fun to do as for puting it up on the net well only thsi site because of bad experence ive had ( if a forum likes to use the retarded to discripe something then i wont be putting it up ) but this site i will because of the resepct you give here to everyone
Subject: Re: aspergers documentry
Written By: pink daisy on 02/07/07 at 4:41 am
I think you're doing a fantastic thing - karma to you. My son is high functioning autistic, but so similar to AS that he missed out on that diagnosis by one point on the diagnostic criteria. He's 13 and a great person, as I can tell you are too. Anything that raises public awareness and dispels some of the myths about AS and autism has to be a good thing. I personally think that it's not so much a question of being challenged as being more highly evolved than neurotypicals. I'll definitely watch if it's available to me, and I wish you all the luck in the world :)
Subject: Re: aspergers documentry
Written By: mr crowly on 02/09/07 at 12:26 pm
thanks daisy how old youre son when he was diagnosed i was 18/19 when i was tested for it
Subject: Re: aspergers documentry
Written By: pink daisy on 02/09/07 at 1:14 pm
thanks daisy how old youre son when he was diagnosed i was 18/19 when i was tested for it
My son has just turned thirteen and although it was evident that he had some sort of problem since he was about eighteen months old, he didn't get any kind of diagnosis until he was eight. The psychiatrists seemed reluctant to say the 'autism' word in case they upset me! But I knew he was autistic. He was diagnosed as having AS first, then he was reassessed about a year later and they changed it to high-functioning autism. Interestingly, once we realised that my son was autistic, the penny finally dropped for his father - he's clearly on the spectrum too, as was his father before him. Any history in your family?
Subject: Re: aspergers documentry
Written By: mr crowly on 02/09/07 at 2:03 pm
nope lol not as iam aware some people in my family say my first dad but you know what they say inoccent untill proven positive
any obbsisions rotuine how about school ( sorry for all the quistions ) i went to 3 diffrent schools ( st pauls in foxbar paisly st james in renfrew mary russel in paisly and ceaderbank in westlothian those are done in order of primery and high school) ceaderbank i didnt enjoy ok ok they got me in to college but i felt that they put too much in ( i really whish theres a bending too fingers here) ld like for example iam half mainstream ( i can do things that mainstream can do but i have a high level learning difficulty and mild autisim ) yet they dont aknowlege that they just think of you as a child i remember one time that i was out on a camp trip ( hostel for some reason they called it camp) i saw a horror book know how the nightmare ones and the point horror one i wanted to buy a nightmare one they whould not let me they sugested a coulouring book instead i was 15 and the books were ment for teens and up lol my other schools unless there was sitoution that need it never foucused on it and treated you more like adaults ( mainly because two of them were mainstarem schools anyway) i am not iam perfect but still you ........ know
obbsiosns
i love comics books ( x-men spawn vamperella ) to name a few i whould spend a fortune on them if i chould
i love acting ( i left the place now but i still love doing it ) anything to do with acting
music and wrestling are big things with me 70s/80s i love pop music rock metal you name i love it to a certain exteint lol ( smokie 10 cc judas preist culture club softcell the sweet )
i also love stars in their eyes that reminds me ill need to set up a thread on program lol
just found out ive just to do bullet points and itll be done from there
Subject: Re: aspergers documentry
Written By: pink daisy on 02/09/07 at 7:40 pm
It's OK, I don't mind you asking questions! Sounds like you had a tough time in school. My son goes to a mainstream school but he started out in a fully integrated school run by a lady with AS which had all kinds of kids. When he moved to mainstream we didn't tell them he was autistic and he was there for a while before anyone noticed anything. He had a one to one helper for a term. In mainstream education I feel that there is a tendency for some teachers to focus on my son's disbaility rather than his abilities - and he's a very bright kid. He's lazy though! Like you, he's really into music - he's an emo and really loves rock. He plays electric guitar and taught himself to read music. He has his own very definite style already. I moved him to another school at one point because his teacher didn't believe in him and assessed him for his SATs way below what he actually achieved.
When he was younger he had obsessions about various things: anything with wheels/transport/planes. We had a long period of dinosaurs, then breeds of cattle and sheep. Now he obsesses about rock stars and playing guitar. It could be worse - I'm into music myself, so I can live with it and even empathise.
He also shares your interest in acting and we used to attend a theatre group as a family where we lived in Wales. Since we moved to Dorset, he's been for an audition for modelling and extras work and they were very interested in him because he is good looking and has a unique look for a kid his age, so I might pursue that one. Oh yeah, and karma to you for mentioning The Sweet!
Subject: Re: aspergers documentry
Written By: mr crowly on 02/10/07 at 4:39 pm
yes the sweet rocks theres a lyrc in Fox on the run ( i i dont know youre name cause you dont look the same ) thats kinda what i mean by steriotype mention the word and they think rainman. i know what you mean by the teachers focusing on the autism thing it really grind my gears ( family guy refrence) when they do that . yes i love acting but i dont get much time to do it because of my work . dose youre son play any instruments at all .
Subject: Re: aspergers documentry
Written By: pink daisy on 02/10/07 at 6:07 pm
yes the sweet rocks theres a lyrc in Fox on the run ( i i dont know youre name cause you dont look the same ) thats kinda what i mean by steriotype mention the word and they think rainman. i know what you mean by the teachers focusing on the autism thing it really grind my gears ( family guy refrence) when they do that . yes i love acting but i dont get much time to do it because of my work . dose youre son play any instruments at all .
Could be worse - they could think Lawnmower Man! :D Yes, he plays electric and acoustic guitar, and also keyboards. He would like to learn drums, but I'm not sure my nerves would stand it.... ;D What is your work?
Subject: Re: aspergers documentry
Written By: mr crowly on 02/11/07 at 8:25 am
Could be worse - they could think Lawnmower Man! :D Yes, he plays electric and acoustic guitar, and also keyboards. He would like to learn drums, but I'm not sure my nerves would stand it.... ;D What is your work?
lawnmower man ?as in stephen king turnd movie ? iam a kitchen potter for the dalmahoy hotel in edinburgh who dose you re son look up to in music. whats youre line of work
Subject: Re: aspergers documentry
Written By: pink daisy on 02/11/07 at 10:04 am
lawnmower man ?as in stephen king turnd movie ? iam a kitchen potter for the dalmahoy hotel in edinburgh who dose you re son look up to in music. whats youre line of work
Yeah, that's the one - with Pierce Brosnan. My son is into Green Day, Trivium, Evanescence, My Chemical Romance, Lost Prophets, Led Zeppelin, Metallica, Bon Jovi - and has a healthy respect for Def Leppard, thanks to me! I'm a student midwife.
Subject: Re: aspergers documentry
Written By: mr crowly on 02/11/07 at 10:27 am
sorry daisy but i was asking why anyone whould conect the lawnmower man to as midwife student you mean youre at unie right as for the music it plain to see where he gets tast from lol ;D whats youre fave leaperd track ( off topic i know but still)
Subject: Re: aspergers documentry
Written By: pink daisy on 02/11/07 at 5:42 pm
sorry daisy but i was asking why anyone whould conect the lawnmower man to as midwife student you mean youre at unie right as for the music it plain to see where he gets tast from lol ;D whats youre fave leaperd track ( off topic i know but still)
I mentioned Lawnmower Man because my son's father used to compare him to that character - I have no idea how that man's mind works! Yes, I am at uni (Bournemouth) but currently taking a year out to look after my kids after splitting from their aforementioned father last September. Happily, I might add! :) Fave Def Leppard track - ooh, that's a tough one! Can I have two? Animal and Work It Out. I wanted to ask you - have you, or anyone you know, tried the gluten-free/casein-free diet? My son has been on it since he was eight and it really works for him.
Subject: Re: aspergers documentry
Written By: mr crowly on 02/12/07 at 1:49 pm
I mentioned Lawnmower Man because my son's father used to compare him to that character - I have no idea how that man's mind works! Yes, I am at uni (Bournemouth) but currently taking a year out to look after my kids after splitting from their aforementioned father last September. Happily, I might add! :) Fave Def Leppard track - ooh, that's a tough one! Can I have two? Animal and Work It Out. I wanted to ask you - have you, or anyone you know, tried the gluten-free/casein-free diet? My son has been on it since he was eight and it really works for him.
the what diet sorry never heard of it let it go evrything on pyromanina
Subject: Re: aspergers documentry
Written By: 80s_cheerleader on 03/19/07 at 10:05 am
I mentioned Lawnmower Man because my son's father used to compare him to that character - I have no idea how that man's mind works! Yes, I am at uni (Bournemouth) but currently taking a year out to look after my kids after splitting from their aforementioned father last September. Happily, I might add! :) Fave Def Leppard track - ooh, that's a tough one! Can I have two? Animal and Work It Out. I wanted to ask you - have you, or anyone you know, tried the gluten-free/casein-free diet? My son has been on it since he was eight and it really works for him.
I think that's the diet that we tried for my son (who has APD & ADD), but it didn't work for him.
My oldest son has a friend that I think has AS, but his parents are oblivious to it. I once asked the mom if he had been tested for anything else and she was ADAMANT that he doesn't have anything else. He has been diagnosed with ADD, but, here in the States, that seems to be the "catch-all" diagnosis. He just has so many symptoms that are NOT even close to ADD, I think it makes sense that there's something else going on. I've looked into it a bit and it seems that he fits the AS profile almost to a "T".
Subject: Re: aspergers documentry
Written By: pink daisy on 03/22/07 at 5:12 pm
I think that's the diet that we tried for my son (who has APD & ADD), but it didn't work for him.
My oldest son has a friend that I think has AS, but his parents are oblivious to it. I once asked the mom if he had been tested for anything else and she was ADAMANT that he doesn't have anything else. He has been diagnosed with ADD, but, here in the States, that seems to be the "catch-all" diagnosis. He just has so many symptoms that are NOT even close to ADD, I think it makes sense that there's something else going on. I've looked into it a bit and it seems that he fits the AS profile almost to a "T".
I have a friend just like that! Her son clearly has AS but she insists he's just an individual. Ironically, she teaches special needs kids...
Some news - after five years on the diet, I thought my son had built up a tolerance to gluten, so took him off the diet gradually over the last few weeks to see what would happen. So far, so good - and he's a happy boy to be eating pizza with his friends :)
Subject: Re: aspergers documentry
Written By: mr crowly on 03/25/07 at 8:36 am
sorry i havent replyd to this in a while its unfortunet that a lot of people tend to turn a blind eye when it comes to as i dont know why but it happens my high school was like that they noticed i had some of the symptoms but never done anything about it i had to wait untill college to get the test done >:( i feel its to do with persons maturity ( my case is diffrent) if there mature enough to handle it fair enough but if not its best to wiat till they have matured then say/see about getting tested its difficult i know but its one of the best ways to go about it
Subject: Re: aspergers documentry
Written By: karen on 03/26/07 at 9:46 am
I think if there is a reliable test then the earlier it is done the better. Surely it can only be good for the child and the rest of the family if they know what the 'problem' is and ways of coping with it.
Subject: Re: aspergers documentry
Written By: 80s_cheerleader on 03/27/07 at 1:07 am
The thing that I would think would set off a few buzzers in these parents' heads would be the fact that their son has been on EVERY ADD med on the market, has tried the diet, therapy, etc and NONE of them have worked ???
Subject: Re: aspergers documentry
Written By: mr crowly on 03/29/07 at 3:55 pm
ok what is this diet thing just curious
theres diffrent spectrems of as maby thats why the kids parents dont belevee it
Subject: Re: aspergers documentry
Written By: 80s_cheerleader on 04/02/07 at 9:38 am
ok what is this diet thing just curious
theres diffrent spectrems of as maby thats why the kids parents dont belevee it
There are a few different diets out there where you avoid things such as gluten, processed foods, sugars, etc. that are supposed to help with ADD & other problems. The one we did was no dairy, little (if any) sugar, no Nutrasweet or other artificial sweeteners, no caffeine, no processed meats, no preservatives, no MSG, no food dyes, no white flour. It was a nightmare and did nothing except give him diarrhea (and empty our wallets as the stuff with no white flour or dyes is EXPENSIVE). Then, after 2 weeks, you slowly add these items back into their diet.....we didn't see a change after 2 weeks so we couldn't see any difference when we added the stuff back in so we stopped it after a month.
AFA the kid, when I asked the mom about being tested for anything else, I didn't specifically mention AS. She was complaining that his meds didn't seem to be working so I simply asked "Well, have you considered that maybe it's not just ADD? Maybe there's something else going on. Has he been tested for anything else?" Her response "Why should we test him for anything else? He's already been diagnosed with ADD. Have you had *my son* tested for anything else?" To which I replied "Well, his initial diagnosis wasn't ADD, it was APD and he doesn't have any symptoms other than what those 2 cover so 'No'." Then she said "Well, I KNOW he doesn't have anything other than ADD so I'm not going to have him tested for anything else."
It might not be AS, but there's definitely something else going on with this kid. He got into physical (or almost physical) fights with 5-6 kids last year and the parents always blame it on the other kid.....sorry, but IMO, if a kid is getting into THAT many fights (and not with kids who are friends with each other either), there's something going on. What's the common element of each of these? The kid.